Eleven brave patients from Birmingham Children’s Hospital are the stars of a brand new city centre photography exhibition, intended to bolster the hospital’s fundraising efforts to build the UK’s first Rare Diseases Centre for children.
The exhibition, titled Stars of Steelhouse Lane, will be in the city centre until Friday 30th September and stars young patients, all of who are living with a rare or undiagnosed condition.
With donations now at just over £1.5 million, the children and their families are determined to help the hospital charity reach its £3.65 million target to fund the Rare Diseases Centre. All the patients star in the photography exhibition and one of the children featured is Phoebe.
Phoebe’s dad James, from Halesowen, said:
“Being in hospital becomes your life. You don’t go home. You stay there every night and you care and support for your child. Being a dad to Phoebe is one of the most amazing experiences I’ve ever had in my life, but because of her rare condition it’s also the hardest.
“Without the hospital we wouldn’t be where we are today. We know that if Phoebe gets unwell, the hospital is always there and there’s always a light at the end of the tunnel. Having this new Rare Diseases Centre will be massive for Phoebe.”
Birmingham Children’s Hospital Charity’s £3.65 million Star Appeal will change the lives of thousands of patients living with a rare or undiagnosed condition. It will improve diagnosis, ensure patients are at the forefront of medical advances, stop families feeling isolated and alone, bring a team of experts from all the specialities at the hospital under one roof and increase research into rare diseases.
As well as urging residents to visit the exhibition, the patients and their families are hoping that locals will help them raise the much-needed funds by getting involved in the following ways:
- Making a donation online at www.bch.org.uk/stars
- Texting RARE to 70020 to donate £3 (standard network rates apply)
Retail BID Birmingham are proud to sponsor the project for Birmingham Children’s Hospital Charity’s exhibition to take place in the city centre.
For more details on the Stars of Steelhouse Lane visit www.bch.org.uk/starsofsteelhouselane.